Our network

National Network for Rare Superficial Vascular Anomalies
Fifteen hospital teams affiliated with the FAVA-Multi network have been designated since late 2023 as reference or competence centers for their expertise in Superficial Vascular Anomalies (SVA).
They are located across the country, including 1 coordinating rare disease reference center (CRMR) at Lariboisière Hospital, 2 constituent CRMRs, and 12 competence centers (CCMR).

The SVA center network interacts closely with the MAGEC network (rare genetic skin and mucous membrane diseases), affiliated with the FIMARAD network.
Coordinating Center in Paris (Dr. Annouk Bisdorff-Bresson)
Location: Hôpital Lariboisière - Neuroradiology Department
Yellow Sector Door 1
75010 PARIS
Secretariat phone number: 0033-(0)1 49 95 83 59
Email: consultation.angiomes.lrb@aphp.fr
Email (research):
recherche.angiomes.lrb@aphp.fr

Constituent Center in Lyon
(Prof. Laurent Guibaud)
Location: Hôpital Femme Mère Enfant - Pediatric Imaging Department
59 Boulevard Pinel
69500 BRON
Secretariat phone number: 0033-(0)4 27 85 57 72/ 04 27 85 54 11
Email: ghe.hfme.ism@chu-lyon.fr

Constituent Center in Montpellier (Prof. Hélène Vernhet-Kovacsik and Prof. Isabelle Quere)
Location: CHU de Montpellier Vascular Radiology Department
80 avenue Augustin Fliche
34000 MONTPELLIER
Secretariat phone number: 0033-(0)4 67 33 60 00

AVS Competence Center of Amiens (Prof. Marie-Antoinette Sevestre and Prof. Sylvie Testelin)
Location: CHU Amiens-Picardie
Maxillofacial Surgery and Vascular Medicine Department
South Site – Main Entrance
1 Rond-Point du Professeur Christian Cabrol
80054 Amiens cedex 1
Secretariat phone number: 03 22 08 90 50/ 03 22 08 90 70
Email: ccmalformationsvacsulaires@chu-amiens.fr and sevestre.marie-antoinette@chu-amiens.fr

AVS Competence Center of Brest (Prof. Philippe Quehe and Prof. Luc Bressollette)
Location: CHU de Brest – Hôpital de la Cavale Blanche
Department of Vascular Medicine, Internal Medicine and Pulmonology
2 avenue Foch 29000 BREST
Secretariat phone number: 02 98 34 75 45
Email: philippe.quehe@chu-brest.fr

AVS Competence Center of Caen (Prof. Anne Dompmartin)
Location: Hôpital Côte de Nacre
Dermatology Department
Avenue de la Côte de Nacre
CS 30001 - 14033 Caen cedex 9
Secretariat phone number: 02 31 27 25 10
Email: dompmartin-a@chu-caen.fr

AVS Competence Center of Clermont-Ferrand (Dr. J Pasteur and Dr. Marie Bachelerie)
Location: Dermatology and Cutaneous Oncology Department
1 place Lucie et Raymond Aubrac
63100 Clermont-Ferrand
Secretariat phone number: 04 73 75 05 50
Email: jpasteur@chu-clermontferrand.fr

AVS Competence Center of Grenoble (Prof. Sophie Blaise and Dr. Christophe Seinturier)
Location: Hôpital A. Michallon Vascular Medicine Department
Boulevard de la Chantourne 38700 La Tronche
Belledonne Elevators, 10th floor, Unit C
Secretariat phone number: 04 76 76 53 61
Email: secretariat1medvasc@chu-grenoble.fr

AVS Competence Center of Lille (Dr. Caroline Degrugillier-Chopinet)
Location: Cardiovascular Functional Explorations/Pediatric and Congenital Cardiology
Boulevard du Pr Jules Leclerc, 59037 Lille
Secretariat phone number: 03 20 44 52 26/03 20 44 52 30
Email: consult.cardioinf@chru-lille.fr/secretariat.efcv@chru-lille.fr

AVS Competence Center of Marseille (Dr. Stéphanie Mallet)
Location: Hôpital de La Timone - Dermatology and Cutaneous Oncology Department of Prof. Marie-Aleth Richard
264 Rue Saint-Pierre
13385, Marseille Cedex 5
Secretariat phone number: 04 91 38 75 94

AVS Competence Center of Nancy (Prof. Nicla Settembre)
Location: Vascular and Endoluminal Surgery Department
CHRU Nancy
1, rue du Morvan
54500 Vandoeuvre Les Nancy, France
Phone number: 03 83 15 43 84
Email: n.settembre@chru-nancy.fr

AVS Competence Center of Rennes (Dr. Bertrand Bruneau)
Location: Hôpital Sud – Mère Enfant Rennes - Medical Imaging Department
16, Boulevard de Bulgarie
35200 Rennes
Secretariat phone number: 02 99 28 96 72
Email: Angelique.LORNE@chu-Rennes.fr

AVS Competence Center of Reunion (Dr. Fernanda Frade)
Location: CHU Felix Guyon (Saint Denis) Pediatric Surgery Department
Allée des Topazes CS 11 021 97400 Saint-Denis
Secretariat phone number: 02 62 90 54 90 or 02 62 90 54 91
Email: sec.chirinfantile.fguyon@chu-reunion.fr

AVS Competence Center of Strasbourg (Prof. Dominique Stephan)
Location: Nouvel Hôpital Civil
Hypertension, Vascular Diseases and Clinical Pharmacology Department
3rd floor - elevator B
1, place de l'hôpital
BP 426 - 67091 Strasbourg cedex
Secretariat phone number: 03 69 55 00 73
Email: sabrina.GRUNERT@chru-strasbourg.fr

AVS Competence Center of Toulouse (Dr. Julie Malloizel-Delaunay)
Location: Hôpital Rangueil - Vascular Medicine Department
Cardiovascular and Metabolic Division
1, avenue du Professeur Jean Poulhès
Building H1 - 2nd floor
TSA 50032 - 31059 Toulouse cedex 9
Secretariat phone number: 05 61 32 24 38
Email: burariviere.sec@chu-toulouse.fr

Psychological and social resources

Psychological support PSY-FAVA-MULTI
• email: psy.favamulti.bch@aphp.fr
• tel: 01.40.25.63.36 (Monday to Friday, 9:00 AM to 4:30 PM)

AVS Support Options

Social assistance with Alliance Sociale
• email: delphine.curis@alliance-sociale.fr
• tel: 06.38.48.61.85

Transition to Adulthood and Social Procedures

Super MAV & Other AVS Association
• email: contact@supermav.fr

Adolescent to Adult Transition Support
Contact La Suite- NECKER
• Inter-network website for Rare Disease Transition
• Adolescent-Adult Transition Day

• Rare Vascular Malformation and Adapted Physical Activity

More information on the Resources Tab

Paris Kléber Santé

Useful links
• Fava-Multi website (French healthcare network for rare vascular diseases with multisystemic involvement)
• VASCERN website (European network for rare vascular diseases)
• The Paris Nord Rare Diseases Expertise Platform
• UTEP (Transversal Unit for Patient Therapeutic Education) Saint-Louis, Lariboisière, Fernand-Widal. The Paris Nord Rare Diseases Expertise Platform
• ETP « À côté » - Common, Open, Therapeutic, and Fulfilling Workshops, or tailored as appropriate for ETP « À côté »
• The National Rare Diseases Data Bank (BNDMR)
The National Rare Diseases Data Bank (BNDMR) was established by the Ministry of Solidarity and Health for research purposes. Data collection is based on the patient's non-opposition and takes place during their care.

Link to Individual Patient Information Notes – BNDMR (research)
• ISSVA website (International Society for the Study of Vascular Anomalies)